Monday 28 April 2008

Monday morning

Bonjour Everyone!

We've had a great weekend! Been for several pushes round the lake, had coffee and ice creams and driven to our favourite places. I love it here and Annecy is wonderful in the spring.

I started on Prof Pilkington's pill regime (Clomipramine) on Friday and feel ok. I'm still very dizzy but don't feel as tired which is good but I'm hungry all the time and I'm eating like a horse! Hey Ho!!

Simon's coming tomorrow night until Thursday and I can't wait to see him.

Love

Ali

Friday 25 April 2008

Friday afternoon

Bonjour everyone,

Dad chased UPS until the cows came home last night. At 5pm they were supposed to be here and they were still in Luton. DON'T USE UPS!! So this drug regime I'm trying starts tonight. I feel happier because I'm actually doing something.

I had a lovely day today. It was great to see my friends, some of whom I haven't seen in a while, including Katie, Chisper, Rob, Pip, Andrea and Laurent.

Will blog soon, love to all.

Love Ali

Thursday 24 April 2008

Thursday morning

At last we're doing something. Today at 4.30pm we are getting some drugs UPS'd from England. I don't know much about these drugs but Emily thankfully read about them. I'm very happy to be doing something.

Yesterday we went for a push by the lake and lunch in La Bilboque, which is a lovely restaurant with a cheese-board to die for! We saw Rachel & Tom and Jacques, Francoise & kids. It was so kind of them to come.

Today, hopefully Jacques & Francoise are coming to take me for a push and then Tom's coming over again to chat. I love seeing Tom.

Simon is coming after the weekend - I wish him well with his new house! And HAPPY BIRTHDAY TODAY ARCHIE!

Love Ali

Tuesday 22 April 2008

Tuesday morning

Bonjour Everyone!

I feel like I'm in a dream - every time I open my eyes I'm at home in Annecy! I love it here so much!

Firstly, I need to apologise to Mum for pestering for food (steroids) for the 13hr journey down here and secondly thank Dad for getting us here safely.

I still can't walk on my own and need help getting around because my balance isn't so good. My sight and my hearing aren't so good either but I'm happy don't worry!

It was great to see Martin and Deirdre yesterday and Tom here for dinner and I'm looking forward to seeing more friends soon. Jeanette and I are going for a drive today up Semnoz and Forclaz! Yippee!

Love

Ali

Friday 18 April 2008

BONJOUR EVERYONE!!



I'm in bed at the moment dr. Ingram is coming today to check out whetherDr Pilkiington's was of treating me could work. I hoipe so then at least we are\doing someyhing. I did feel that if I took the PCV drug it was doing plenty of harm and not much good. From speaking to people in the know it sounds like PCV is not as helpful. Dad kindly drove up to the 'free yesterday, got my scnas and we parcel forced them to anoethr professor in Stockholm. I hope we go there because #ve heard it's nice. Never been!


I ike staying in bed - It sems safest fore me but Paul took me for a spin yesterday which was really nice to get out.

LOVE



Ali

Wednesday 16 April 2008

Wednesday morninig

hello all

we've decided that Sunday is easier to drive to Annecy so we are going then - no lorries on French roads on Sundays!

Im ok, i am not down for some reason, I intend to have some fun (as soon as this dizzyness goes!) WE will go to Devon, and Suffollk when we can.(Where we went as a young family) Oh I do want to go there . I have such
Seems like i want to go to so many places - i do and we will. fell out of my bed yesterday and dad had to xcome and rescue me - i have such fond memories.

You mighthave read that we are not going for Chemo. I just don't want to feel ill ( and I will) so, we have decided not to go for it.W e 'll see what happens. I'm stll tired from the radiotherapy so gosh knows about the chemo. I'll tell you!

Love

Alii

Tuesday 15 April 2008

Hello eveyone

We'r off to Annwecy on Thursay.....yippee!! I'm so excited. Dad is going to drive, I'm navigating and so is mum.....from the back seat ha ha!

Then, we hope to go to the chateua du berne for a wee break next week. It's such a lovely place - we'll take some photos.

I 'm okay Im not down. I have so much love and support from you lot. I read the comments every day and so do Mum and Dad - thank you.

love

Ali

Monday 14 April 2008

Hi eveyone

I'm in bed at the moment. We've just had a lovely Macmillan nurse called Lisa come round and ask a few questions - she is really nice - good job! '

Mum needed to ask some questions and so did I. We have the answers now! Can't really say what they were - bit morbid! Actually ou arwar friemds and we've been through a whole lot soo i'll tell ou. I just wanted to know how it will end - very sleepy and upstairs - good job eh?
pppjet is here and actualy I'm very happy apar from the fact that I'm out of balance and have a big tummy and cheeks - they will go. we had a sd a super day on Saturday at tony and Alison's wedding - absolutely brilliant all the lads and Tony and Alison - brilliant. We all wish them all the best. We are off to my apt. in Annecy on Thursday and then down to the Chatea du Berne in Provence. Therefore we may be offline for a few days.





love

Ali

Thursday 10 April 2008

Thursday evening

Hello Everyone

Oops! It's bad news I'm afraid. I have what is a fast growing tumor in an innoperable place that is the brain stem. A level 4 tumor. All that remains is chemotherapy and to be honest we're debating going through that. There are a few side effects that are not too nice and we can't decide whether to go foer it or not.. It's only a 30% chance.

I was in awe of my mum, Dad, Simon and Jeanette today.To see people so positive for me was wonderful, truly wonderful. For that I'm in their debt. Well, THINKSHRINK didn't work,it wasn't meant to but thank you all the same, thank you.

There is too much love and supportfor us to drop THINK SHRINK so please keep thinking! Don't wory if I sound a bit down, I'm far from it, jsut a bit shocked.

Hey I'll write tomorrow

Love


Ali

Tuesday 8 April 2008

Hello everone!

Mum asked yesterday morning why I haven't done my blog. I said thgere is not uch news really apart from the fact that Julia gave me the nicest and thinkest Eatser Egg you have eve\ra seen - thank you but Mum and Dad won't let me eat it!

Ok so yesterdays news is that Mum and I went for a ride in anbulance ha ha! We#ve never done that before.

I fell over in my bedroom and cracked my head ( I really cracked it!!) It started bleeding pretty badly then I was sick (it's alright we got it ALL) so we called the ambulance. They (Dan and Michele) said it was a good call caling them - phew you always worry.

So we went to A&E and got glued up.

All is good don't worry. all is good.

Mum went mad and now there are towels round all sharp corners in my bedroom. I fell over in the bath on Thursday so we have to work that one out next. The life! Haha.

Love

Ali

Sunday 6 April 2008

Sunday eveninng

Aparently I being a pain in the bum. I've gone down on Steriods and could eat a horse. Well, almost! Poor old Mum and Dad face a constant harrassemnt about food. I've gone over 13 stome and am normally 11!! I've lost caring because I t shoshould wear off quickly once i'm back on my trainer.. TRouble is it''s in France!! Good thing is that we're talking about taking the train to Annecy yippee!

Wednesday 2 April 2008

Wednedsay Evening

Bonsoir eveyone!



Mum told me that I had to blog so here I am!! Right, the competition for naming the wheelchair is now closed. thank you for your entries and I've chosen 'Chorlton' thank you Zoe, it just stood out for me and Mum did some research to find out that Chorlton is the happiness dragon and happiness follows him wherever he goes. Here is his website if you're bored.... .http://80scartoons.co.uk/-andchorlton-the-wheelies.html

Ha ha it was quite funny yesterday. Mum and I went for a 'push' yesterday. Cor, wheeling in a wheelchair is wheelie difficult! aha . I'm trying to be funny sorry. We only went about a kilometer so and it nearly killed us.

Right, as far as Think Shrink is concerned we have a consultation with all and sundry next Thursday at the Royal Free. Cant wait. ha ha. Seriously, I don't know what is going to happen but of course I'll let you know asap so hang by your computers next Thursday afternoon. As far as I know there are a number of different option of whci I'll tell you about in the next blog or so.

Love

Ali